{"id":46,"date":"2021-02-16T11:44:42","date_gmt":"2021-02-16T11:44:42","guid":{"rendered":"https:\/\/demosites.io\/neve-3\/?page_id=46"},"modified":"2024-03-28T17:25:21","modified_gmt":"2024-03-28T16:25:21","slug":"7b3c2-homepage","status":"publish","type":"page","link":"https:\/\/associationkabanon.fr\/","title":{"rendered":"Homepage"},"content":{"rendered":"\n<div class=\"wp-block-cover alignfull is-repeated\" style=\"min-height:600px;aspect-ratio:unset;\"><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-60 has-background-dim wp-block-cover__gradient-background has-background-gradient\" style=\"background:linear-gradient(135deg,rgb(10,10,19) 0%,rgb(40,116,252) 100%)\"><\/span><div role=\"img\" class=\"wp-block-cover__image-background wp-image-419 is-repeated\" style=\"background-position:100% 0%;background-image:url(http:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/title-6.png)\"><\/div><div class=\"wp-block-cover__inner-container is-layout-flow wp-block-cover-is-layout-flow\">\n<div style=\"height:40px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns are-vertically-aligned-center is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<h1 class=\"wp-block-heading has-text-align-left\" style=\"font-size:56px\"><strong>KABANON, un espoir pour Emma<\/strong><\/h1>\n\n\n\n<p>Emma, sa maman, les <em>enfants<\/em> porteurs de <em>handicap<\/em> et leurs <em>parents<\/em>.<\/p>\n\n\n\n<p>L\u2019association <em>KABANON<\/em> veut leur venir en aide.<\/p>\n\n\n\n<p>Son projet&nbsp;: la construction d\u2019une maison s\u00e9curis\u00e9e pour Emma.<br>Et la cr\u00e9ation d\u2019une Maison des Aidants pour toutes les familles du d\u00e9partement des Pyr\u00e9n\u00e9es-Orientales.<br>Vous pouvez les aider. Par vos dons. Vos conseils. Vos id\u00e9es.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-primary\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.helloasso.com\/associations\/kabanon\/formulaires\/1\">Donnez sur Hello Asso<\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:30%\">\n<p><\/p>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:40px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n<\/div><\/div>\n\n\n\n<div style=\"height:40px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\"><div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"2560\" src=\"https:\/\/associationkabanon.fr\/wp-content\/uploads\/2024\/03\/IMG_7743-1-scaled.jpg\" alt=\"\" class=\"wp-image-446\" srcset=\"https:\/\/associationkabanon.fr\/wp-content\/uploads\/2024\/03\/IMG_7743-1-scaled.jpg 1920w, https:\/\/associationkabanon.fr\/wp-content\/uploads\/2024\/03\/IMG_7743-1-225x300.jpg 225w, https:\/\/associationkabanon.fr\/wp-content\/uploads\/2024\/03\/IMG_7743-1-768x1024.jpg 768w, https:\/\/associationkabanon.fr\/wp-content\/uploads\/2024\/03\/IMG_7743-1-1152x1536.jpg 1152w, https:\/\/associationkabanon.fr\/wp-content\/uploads\/2024\/03\/IMG_7743-1-1536x2048.jpg 1536w\" sizes=\"auto, (max-width: 1920px) 100vw, 1920px\" \/><\/figure>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading\"><strong>Il \u00e9tait une fois \u2026<\/strong><\/h2>\n\n\n\n<h6 class=\"wp-block-heading\"><em>Une histoire de vie<br>Rythm\u00e9e au syndrome Kabuki<br>Qui a chamboul\u00e9&nbsp;<br>Toute une maisonn\u00e9e.<\/em><\/h6>\n\n\n\n<p>Emma, 7 ans, est atteinte d\u2019une maladie g\u00e9n\u00e9tique rare. <strong><a href=\"https:\/\/www.orpha.net\/pdfs\/data\/patho\/Han\/Int\/fr\/SyndromeKabuki_FR_fr_HAN_ORPHA2322.pdf\">Le syndrome Kabuki<\/a>.<\/strong><\/p>\n\n\n\n<p>Elle est branch\u00e9e \u00e0 une gastrostomie 16h\/24h, avec des hypoglyc\u00e9mies s\u00e9v\u00e8res. Sa prise en charge n\u00e9cessite une surveillance accrue, jour et nuit. Atteinte d\u2019un spectre autistique \u00e9lev\u00e9, elle n\u2019a aucune notion du danger. Son lieu de vie n\u2019est plus adapt\u00e9 \u00e0 sa pathologie. Pour son confort de vie et sa s\u00e9curit\u00e9.<\/p>\n\n\n\n<p>Le <strong>premier objectif<\/strong> de l\u2019association KABANON&nbsp;: r\u00e9colter des fonds pour lui offrir un h\u00e9bergement adapt\u00e9 \u00e0 toutes ses sp\u00e9cificit\u00e9s extraordinaires. De plain-pied, et s\u00e9curis\u00e9.<\/p>\n\n\n\n<p>\u00c0 sa majorit\u00e9 se posera la question d\u2019une structure d\u2019accueil qui h\u00e9las, n\u2019existe pas, aujourd\u2019hui, sur le territoire catalan.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns are-vertically-aligned-top is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-vertically-aligned-top is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"http:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/neve-demo-image-28.png\" alt=\"\" class=\"wp-image-378\" srcset=\"https:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/neve-demo-image-28.png 800w, https:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/neve-demo-image-28-300x300.png 300w, https:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/neve-demo-image-28-150x150.png 150w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/figure>\n\n\n\n<div style=\"height:16px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Il \u00e9tait une fois \u2026<\/strong><\/h3>\n\n\n\n<p><strong>L<\/strong>es <strong>A<\/strong>idants \u2026&nbsp;<\/p>\n\n\n\n<p>En France, quelques 9,3 millions de personnes se d\u00e9clarent aidants, selon deux \u00e9tudes publi\u00e9es le 2 f\u00e9vrier 2023 par la DREES, le service statistique des minist\u00e8res sociaux.<\/p>\n\n\n\n<p>Il appara\u00eet n\u00e9cessaire de proposer des solutions de r\u00e9pit, que ce soit en individuel (soutien psychologique,conseils ) ou en groupe (pour partager des exp\u00e9riences, se soutenir, rompre l\u2019isolement) afin d\u2019apporter un soutien et permettre aux aidants de pouvoir se retrouver dans un lieu qui leur est destin\u00e9 \u00e0 100%.<\/p>\n\n\n\n<p>C\u2019est le <strong>deuxi\u00e8me objectif<\/strong> de l\u2019association KABANON\u00a0: cr\u00e9er la premi\u00e8re <strong>Maison des Aidants<\/strong> dans le d\u00e9partement des Pyr\u00e9n\u00e9es-Orientales.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-top is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"http:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/neve-demo-image-29.png\" alt=\"\" class=\"wp-image-373\" srcset=\"https:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/neve-demo-image-29.png 800w, https:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/neve-demo-image-29-300x300.png 300w, https:\/\/associationkabanon.fr\/wp-content\/uploads\/2021\/10\/neve-demo-image-29-150x150.png 150w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/figure>\n\n\n\n<div style=\"height:16px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Il \u00e9tait une fois \u2026<\/strong><\/h3>\n\n\n\n<p><strong>L&#8217;I<\/strong>nclusion et le <strong>H<\/strong>andicap&#8230;<\/p>\n\n\n\n<p>Fruit d\u2019une r\u00e9flexion et d\u2019\u00e9changes de tous les acteurs de l\u2019Association Kabanon, le projet associatif veut incarner une dynamique de co-construction. D\u2019abord dans l\u2019int\u00e9r\u00eat des enfants porteurs de handicap. Mais aussi pour leurs proches, aidants, dans le d\u00e9partement des Pyr\u00e9n\u00e9es-Orientales.&nbsp;<\/p>\n\n\n\n<p>Car le <strong>troisi\u00e8me objectif<\/strong> de l\u2019Association KABANON&nbsp;sera de proposer un accueil de jour \u00e0 la carte qui permettrait d\u2019apporter une solution ponctuelle de r\u00e9pit aux familles, des animations et une prise en charge personnalis\u00e9e au mieux pour les enfants porteurs de handicap de 3 \u00e0 12 ans.<\/p>\n\n\n\n<p><em><strong>Toute personne, en situation de handicap, a droit \u00e0 la solidarit\u00e9 de l\u2019ensemble de la collectivit\u00e9 nationale, qui garantit en vertu de ses obligations et du principe d\u2019\u00e9galit\u00e9 l\u2019acc\u00e8s aux droits fondamentaux reconnu pour tous (loi de 2002 et de 2005, convention des Nations-unies)<\/strong><\/em>.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:40px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Il \u00e9tait une fois \u2026 Une histoire de vieRythm\u00e9e au syndrome KabukiQui a chamboul\u00e9&nbsp;Toute une maisonn\u00e9e. Emma, 7 ans, est atteinte d\u2019une maladie g\u00e9n\u00e9tique rare. Le syndrome Kabuki. Elle est branch\u00e9e \u00e0 une gastrostomie 16h\/24h, avec des hypoglyc\u00e9mies s\u00e9v\u00e8res. Sa prise en charge n\u00e9cessite une surveillance accrue, jour et nuit. Atteinte d\u2019un spectre autistique \u00e9lev\u00e9,&hellip;&nbsp;<a href=\"https:\/\/associationkabanon.fr\/\" rel=\"bookmark\">Read More &raquo;<span class=\"screen-reader-text\">Homepage<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"neve_meta_sidebar":"full-width","neve_meta_container":"contained","neve_meta_enable_content_width":"on","neve_meta_content_width":100,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":"on","_themeisle_gutenberg_block_has_review":false,"footnotes":""},"class_list":["post-46","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/associationkabanon.fr\/index.php\/wp-json\/wp\/v2\/pages\/46","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/associationkabanon.fr\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/associationkabanon.fr\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/associationkabanon.fr\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/associationkabanon.fr\/index.php\/wp-json\/wp\/v2\/comments?post=46"}],"version-history":[{"count":13,"href":"https:\/\/associationkabanon.fr\/index.php\/wp-json\/wp\/v2\/pages\/46\/revisions"}],"predecessor-version":[{"id":495,"href":"https:\/\/associationkabanon.fr\/index.php\/wp-json\/wp\/v2\/pages\/46\/revisions\/495"}],"wp:attachment":[{"href":"https:\/\/associationkabanon.fr\/index.php\/wp-json\/wp\/v2\/media?parent=46"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}